Le Lézard
Classified in: Health, Business
Subjects: NPT, LEG, BFA

ALS Advocates Secure Rare Bipartisan Support for End to Five-Month Wait for Social Security Disability Insurance


 

WASHINGTON, Dec. 8, 2020 /PRNewswire/ -- Congress passed a law ending the five-month waiting period for people with ALS to access Social Security Disability Insurance benefits on Tuesday. The ALS Disability Insurance Access Act, which now goes to President Trump for signature, comes after years of work from ALS advocates, who educated and built support among lawmakers from both parties.

"People living with ALS, along with their families and supporters, created the momentum and support for this bill."

"People living with ALS, along with their families and supporters, created the momentum and support for this bill," said Tommy May, who is living with ALS and serves on the Board of Trustees of The ALS Association. "We are grateful to all the members from both parties who voted to help people living with ALS and their families. Support for people with ALS is truly bipartisan."

ALS is a neurodegenerative disease that is 100 percent fatal. It takes about a year to confirm a diagnosis and there is no cure. Average life expectancy is two to five years following diagnosis. People with ALS lose the ability to initiate and control muscle movement. As a result, they lose their jobs and employer-based insurance during the most challenging periods of their lives. Recognizing the devastating nature of ALS, Congress passed bipartisan legislation in 2000 that waived the two-year waiting period for Medicare.

"This victory would not have been possible without the ALS community's countless letters, calls and virtual and in-person visits urging action by Congress," said Calaneet Balas, President and CEO of The ALS Association. "We are grateful to the entire community, and especially those people with ALS who worked on this issue and who have since passed."

"Because of its degenerative and often aggressive nature, some people living with ALS lose their fight with the disease before the five-month waiting period is over," Balas added. "It is essential that we eliminate this harmful waiting period and allow immediate access to disability benefits for those who have received an ALS diagnosis."

About The ALS Association

ALS Association is the largest private funder of ALS research in the world. The Association funds global research collaborations, provides assistance for people with ALS and their families through its nationwide network of chapters and certified clinical care centers, and advocates for better public policies for people with ALS. The ALS Association builds hope and enhances quality of life while urgently searching for new treatments and a cure. For more information about The ALS Association, visit our website at ALS.org.

 

SOURCE The ALS Association


These press releases may also interest you

at 16:15
Veracyte, Inc. today announced financial results for the second quarter ended June 30, 2021, and provided an update on recent business progress. "Our business demonstrated significant momentum in the second quarter, with particularly strong growth...

at 16:12
eHealth, Inc. , a leading private online health insurance marketplace, today announced its financial results for the second quarter ended June 30, 2021. View the full press release in PDF. The news release and earnings presentation can be accessed on...

at 16:10
CytRx Corporation ("CytRx" or the "Company"), a specialized biopharmaceutical company focused on research and development for the oncology and neurodegenerative disease categories, today announced that based on results from its 2021 Annual Meeting...

at 16:10
ICARE AD-US is an observational real-world phase 4 study designed to evaluate the safety and effectiveness of ADUHELM in clinical practiceICARE AD-US is one of three programs to generate post-approval data on ADUHELM, including the re-dosing Phase 3b...

at 16:09
Welltower® Inc.  has issued the following business update which can be found at: https://welltower.com/july-business-update About WelltowerWelltower® Inc. , an S&P 500 company headquartered in Toledo, Ohio, is driving the transformation of health...

at 16:08
The National Association for Home Care & Hospice (NAHC) and Partnership for Quality Home Healthcare (PQHH) today commended the introduction of the Choose Home Care Act of 2021. The bipartisan legislation, introduced by Senators Debbie Stabenow (D-MI)...



News published on 8 december 2020 at 16:05 and distributed by: