Le Lézard
Classified in: Health, Covid-19 virus
Subjects: MAV, AVO

Media Advisory - Patients in the 'Fight for Our Lives' call on Parliament to STOP the PMPRB!

As the world comes together to fight coronavirus, Canadians with life-threatening rare and common diseases will march on Parliament Hill to ask for the same support in the 'Fight for Our Lives'

OTTAWA, March 9, 2020 /CNW/ - THE ISSUE: The federal government's draconian new patented drug pricing rules to be implemented by the Patented Medicine Prices Review Board (PMPRB) prevent life-saving treatments from coming to Canada. It's already happening ? remarkable new treatments for cystic fibrosis and sickle cell disease are now available elsewhere but haven't even been filed for approval here.

THE EVENT: The Canadian Organization for Rare Disorders (CORD) is leading a contingent of Canadian patients with rare and common diseases to Parliament Hill to "Fight for Our Lives" and to deliver one common message to their Members of Parliament: "Stop the PMPRB!" 

WHEN: Tuesday, March 10, 2020, at 12 pm

WHERE: Centennial Flame, Parliament Hill, Ottawa

Leaders of CORD and representatives of Canadians with cystic fibrosis and sickle cell disease are available to explain the crisis facing Canadian patients.

"The federal drug price controls are a death sentence for many patients." ? Chris McLeod, Chair of the Canadian Cystic Fibrosis Treatment Society and a CF patient.

"For decades, there have been no effective treatments for sickle cell disease. We now have a revolutionary new drug that can prevent the root cause of the disease, but it won't be made available to Canadians any time soon." ? Biba Tinga, President and Executive Director of the Sickle Cell Disease Association of Canada.

SOURCE Canadian Organization for Rare Disorders

These press releases may also interest you

at 09:05
Guided Therapeutics, Inc. (Pink Sheets: GTHP), the maker of a rapid and painless testing platform based on its patented biophotonic technology, announced that it had completed software changes and documentation required by the Chinese FDA for...

at 09:05
Octapharma USA and BioMatrix Specialty Pharmacy are supporting a new investigator-initiated research study led by Kelly McCants, M.D., Medical Director of the Norton Heart & Vascular Institute in Louisville, Ky., focused on treating patients with the...

at 09:04
New brand CarryOntm has launched sparkling CBD waters as well as a brand mission to normalize the pursuit of mental wellbeing.  With over 56% of Americans reporting negative effects on their mental wellbeing, CarryOntm believes that the pursuit of...

at 09:00
InspectIR Systems, LLC, a purpose-driven company with proprietary measurement methods, devices and tools, has begun clinical trials aimed at detecting the novel coronavirus (COVID-19). InspectIR partnered with University of North Texas Associate...

at 09:00
CAN Community Health announced that Tampa Family Pharmacy founders Haley Miller and Crystal Campbell have resigned effective immediately and sold their remaining interest to CAN Community Health to spend more time with their respective families....

at 09:00
PTC Therapeutics, Inc. today announced that it will hold a series of virtual deep dive webinars discussing its therapeutic platforms and programs. The first webinar in the series will discuss its Bio-e platform on Friday, June 5 at 10:00 a.m. ET....

News published on 9 march 2020 at 12:00 and distributed by: