Le Lézard
Classified in: Health
Subject: FVT

32 Rare Disease Charities Will Board the Historic LeRoy King Carousel at First-Ever RARE Carousel of Possible Dreams



ALISO VIEJO, Calif., Jan. 3, 2018 /PRNewswire-USNewswire/ -- Global Genes, a leading rare disease patient advocacy organization, and Festival of Children Foundation are proud to partner for the first-ever RARE Carousel of Possible Dreams on February 28, 2018 in San Francisco, at the Children's Creativity Museum. The inaugural event is a collaborative effort to support 32 rare disease charities 'dreams' by utilizing Festival of Children Foundation's well-known Carousel of Possible Dreams fundraiser on World Rare Disease Day.

Sandy Segerstrom Daniels takes a photo of actress and Global Genes ambassador, Madison McLaughlin, with Shira Strongin (rare disease patient advocate) at Festival of Children's Carousel of Possible Dreams at Disneyland in October 2016.

"We are so honored to partner with an exceptional organization that continuously gives back to children and families around the country," said Nicole Boice, CEO Global Genes. "This is an important time for the rare community. We know this partnership will allow rare charities and families the opportunity to learn how to increase awareness for their disease, while helping raise the much-needed funding for rare families."

The RARE Carousel of Possible Dreams will provide a unique fundraising opportunity for the 32 participating rare disease charities.  Rare Disease representatives will ride the celebrated LeRoy King Carousel over the course of the event to complete their individual pledge drives that will fund defined "dreams" or needs. The dreams range from funding scholarships and educational materials, to supporting family meet-ups, training tutors to work with rare disease children, emergency preparedness, and special customized wheel-chairs among many others.

"Working with Global Genes on this collaborative fundraiser is an incredible opportunity for Festival of Children Foundation," said Sandy Segerstrom Daniels, founder and executive director Festival of Children Foundation. "We are going to help realize dreams, change lives, bring hope to so many children and families in the Global Genes rare disease community." 

The inaugural RARE Carousel of Possible Dreams will take place on World Rare Disease Day, Wednesday, February 28 from 6 p.m. ? 8:30 p.m. at the Children's Creativity Museum. For more information, to register, or to join a team or donate, please visit festivalofchildren.org/SF18.

For a complete list of participating organizations visit: globalgenes.org/rarecarousel/.

About Global Genes
Global Genes is a leading global rare disease patient advocacy organization. The group's mission is to connect, empower and inspire the rare disease community. Recognized worldwide by the Blue Denim Genes Ribbontm, Global Genes unites experts, advocates and patients of all ages to stand together in hope for treatments and cures for the estimated 7,000 rare and genetic diseases that impact approximately 30 million Americans and over 350 million people worldwide.

About Festival of Children Foundation
Festival of Children Foundation is a 501 (c) (3) non-profit organization that serves to bring together and coordinate the efforts of charities, companies and individuals who actively work to improve the lives of children. Festival of Children Foundation gives a voice, guidance and support. 100% of the administrative costs are covered by designated funding, allowing donations to go further in direct support of programs and services that improve the lives of children. www.festivalofchildren.org

Global Genes logo

SOURCE Global Genes


These press releases may also interest you

at 20:06
Biohaven Pharmaceutical Holding Company Ltd. ("Biohaven" or the "Company") and Royalty Pharma announced today that Biohaven has sold tiered, sales-based participation rights on future global net sales of products containing rimegepant (BHV-3000) or...

at 19:49
The Stepping Stones Group, a provider of therapy and education solutions to children with special needs and autism in educational settings, today announced that Timothy R. Murphy (Tim) is joining The Stepping Stones Group as Chief Executive Officer...

at 19:48
The following is a statement from Justin Shrader, Shrader and Associates LLP: We were dismayed to read the press release from the NCAA issued on June 15th.  Friday marked a day that the NCAA could have reset the conversation on CTE and repetitive...

at 19:20
America's premiere dispensary, 99 High Tide in Malibu, California and Jetty Extracts have come together for the month of June to help support several LGBTQ+ Non profits for Gay Pride Month. "As proud supporters of the LGBTQ+ community and Gay Pride...

at 18:04
Dr. Susan S. Wilder is recognized by Continental Who's Who as a Pinnacle Lifetime Member in the Medical field in recognition of her role as Founder and Chief Executive Officer at LifeScape Premier and LifeScape Medical Associates.           Dr....

at 18:00
U.S. Rep. Mike Thompson (D-CA), a member of the House of Representatives Ways and Means Committee, sponsored a Stop the Bleed training session for Congressional staff this morning. Surgeon members of the American College of Surgeons (ACS) instructed...




News published on 3 january 2018 at 12:00 and distributed by: