Le Lézard
Classified in: Health, Science and technology
Subjects: NPT, TDS, FVT

Global Genes® to Host RARE in the SQUARE January 8-10, 2018, During J.P. Morgan Healthcare Conference


ALISO VIEJO, Calif., Dec. 6, 2017 /PRNewswire-USNewswire/ -- Global Genes®, one of the world's leading rare disease advocacy organizations, will host the second annual RARE in the SQUARE, an event for rare disease innovators, investors, and patients, January 8-10, 2018. Set in San Francisco's Union Square and coinciding with J.P. Morgan's Healthcare Conference, RARE in the SQUARE is a unique networking location that provides an opportunity for rare investors, industry partners, patient community leaders, and rare disease influencers to meet and converse throughout the conference week. RARE in the SQUARE provides a setting for rare disease stakeholders to gather in a distinct and convenient location at the epicenter of the J.P. Morgan conference.

Rare Disease Innovators, Investors, Industry Partners, and Patient Groups Convene in San Francisco's Union Square at RARE in the SQUARE 2016

Integral to RARE in the SQUARE, Global Genes has partnered with EBD Group and Demy-Colton to present the 2018 Biotech Showcase entitled "Drivers of Innovation: Evolving Models in Rare Disease Drug Development". Hosted January 9 from 4:30 ? 5:30 pm, Biotech Showcase will feature a compelling, moderated panel that will examine emerging pharmaceutical business models resulting from growing pressure on drug companies to bring new rare disease therapies quickly and cost-effectively. Panel discussions will be moderated by Danny Levine, Editor - RARE Daily, Host - RARECast, and Principal ? Levine Media Group, and will include key, rare disease pharmaceutical industry stakeholders. For more information about this exciting discourse and panel participants, please visit https://globalgenes.org/rareinthesquare/.

Rare diseases affect more than 350 million people worldwide, equating to 1/10 people in the United States. Approximately 50% of those suffering from a rare disease are children, 30% of whom will not live to see their fifth birthday. Of the more than 7,000 rare diseases identified, 95% lack an FDA-approved drug or therapeutic.

Orphan drug development represents a growing segment of the pharmaceutical industry's drug development pipeline. It is estimated that worldwide prescription drug sales will grow 6.5% annually through the year 2022. Industry analysts project 32% of the increase in sales will be attributable to orphan drugs, equating to an estimated $95 billion market cap. (EvaluatePharma)

"The focus on rare disease innovation and investment continues to increase at the J.P. Morgan Healthcare Conference and within the life sciences sector. This focus is creating increased opportunities for the development of rare disease therapies, bringing hope to millions of rare disease patients around the world," comments Nicole Boice, Founder and CEO of Global Genes. "This is an important time for the rare community. Patient advocates are becoming active partners in progress, and helping to advance rare disease drug development like never before."

Global Genes thanks the following RARE in the SQUARE Sponsors and Partners:

Platinum Sponsor: BioMarin, and Gilead

Gold Sponsors: Alexion, Alnylam, BridgeBio, Horizon Pharma, Impact Pediatric Health, and Shire

Silver Sponsors: Abeona, Clementia, Harmony BioSciences, Genentech, and Vertex

Bronze Sponsors: Enzyvant, Healthcare at Home, LEO Pharma, Ultragenyx, and WAVE Life Sciences

Program Partners: EBD Group, and Ogilvy I FKH

Details 
RARE in the SQUARE
January 8-10, 2018
8:00 a.m. ? 5:00 p.m., daily
Union Square (across from the Westin St. Francis Hotel)
335 Powell St., San Francisco, CA  94102

About Global Genes®
Guided by its mission to connect, empower, and inspire the rare disease community, Global Genes is one of the world's leading rare disease patient advocacy organizations, serving and promoting the needs of patients and families touched by rare diseases. For more information, please visit www.globalgenes.org. Join the rare conversation @GlobalGenes on social media!

 

Global Genes logo

SOURCE Global Genes


These press releases may also interest you

at 06:00
Zymeworks Inc. , a clinical-stage biotechnology company developing a diverse pipeline of novel, multifunctional biotherapeutics to improve the standard of care for difficult-to-treat diseases, today announced the appointment of Dr. Neil Gallagher to...

at 05:45
The "Distribution Deals in Diagnostics 2016 to 2024" report has been added to  ResearchAndMarkets.com's offering. Distribution Deals in Diagnostics provides a detailed understanding and analysis of how and why companies enter distribution...

at 05:10
Neurology Devices: Global Markets is basically a detailed study or report about the worldwide market for medical tools used in treating neurological conditions. These devices could be anything from equipment that helps stimulate the nervous system to...

at 05:04
Sirnaomics Ltd. (the "Company"; together with its subsidiaries, "Sirnaomics" or the "Group"; stock code: 2257), a leading biopharmaceutical company engaged in the discovery and development of advanced RNAi therapeutics, has announced its audited...

at 04:28
GymNation, the homegrown UAE fitness brand, has today announced that due to unprecedented growth, it is reaching capacity across its 12 UAE gym locations and diversifying into a new market, brewing up a storm with the launch of its first-ever branded...

at 04:00
Cancer spreads from its primary tumor to other parts of the body via blood or the lymphatic system in a process termed 'metastasis'. This usually represents an advanced stage in the disease's progression and tends to be fatal. Therefore, preventing...



News published on and distributed by: